We’ve come across a website called Child Disability Help – you can click on it here. It’s run by Pauline Smith from Hockley , who has two disabled sons, and a flavour of it is here:
CHILD DISABILITY HELP is aimed at providing vital support to families in the UK with a child or children up to 16 years of age with a disability.
We hope that by making contact with those in similar situations we can help families realise that they are not alone.
After more than 10 years of constantly battling and dealing with untold health, social, educational and financial issues we know only too well all the challenges you will have to face and concerns you deal with. So we thought it was time to share our knowledge and experiences with others. We will cover all the areas that we have experienced and hope that by sharing this information it will provide those in a similar situation with some guidance.
WHAT HAVE WE BEEN THROUGH?
Seems like hell and you feel that you will never come through it but you do each step at a time – I don?t know how but you manage. The initial shock of the premature birth and all the health issues, complications and life threatening scenarios faced each day at the early stages of life are only the beginning of a long long road to meeting the daily needs of bringing up a disabled child or two! in today?s society.